Update and pics from Tammy...
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Sorry, I haven't updated on little Miss in a while. Saying we have been busy is an understatement!!! We have had so many different people in the home to do an assessment on Taylor, as well has a handful of appointments! Yesterday, Taylor had two appointments in Greenville. Unfortunately, because she has had two UTI's in the past 7 weeks the doctors ordered a procedure called a urethra gram. This was a simple procedure to make sure her kidneys were functioning properly. Everything looked good, so we can rule out a kidney problem. Her second appointment was at a specialty pediatric clinic. Basically the doctors there will work together with our local pediatrician and help us make sure we are getting the services Taylor needs.
So far, our private duty nursing has been great! We have had three different nurses come into our home. They all have different personalities, but they are all awesome! They do such a wonderful job taking care of Taylor. They hold her, stretch her, sing to her, and most of all love on her! We are very blessed to have such caring individuals taking care of our princess! Hopefully, we will be able to keep them! As of last week, our insurance was trying to reduce our hours to 4 per day and then when Jeff is out of school for the summer they are looking to pull all the hours all together. This is another frustrating part of her recovery. Anyone that comes into our home can see the whole picture to why we need help. However, when you're only looking at a piece of paper with a diagnosis of a 8 month old everything is not so clear. I honestly, only hold Taylor for about 10 minutes while our nurse is here. The boys are ALL over mommy! It feels so incredibly great being home, but it is also more draining trying to juggle LIFE!
Taylor started OT today. Her therapist seems so nice and had some great advice about additional therapies Taylor could be receiving. One in which is a vision therapist. We had never even heard of this while in rehab. PT will start on Saturday. She will receive each service twice a week.
I have the ringbone on my phone, "It won't be like this for long" by Darius Rucker. Every time my phone rings, it reminds me that times may be tough right now, but eventually Taylor will get better. I keep holding on to that! Thank you to everyone who continues to lift Taylor and the rest of our family up in prayer! You guys are the best!
Much love,
Tammy
God Bless
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