Update and pics from Tammy...
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Sorry, I haven't updated on little Miss in a while. Saying we have been busy is an understatement!!! We have had so many different people in the home to do an assessment on Taylor, as well has a handful of appointments! Yesterday, Taylor had two appointments in Greenville. Unfortunately, because she has had two UTI's in the past 7 weeks the doctors ordered a procedure called a urethra gram. This was a simple procedure to make sure her kidneys were functioning properly. Everything looked good, so we can rule out a kidney problem. Her second appointment was at a specialty pediatric clinic. Basically the doctors there will work together with our local pediatrician and help us make sure we are getting the services Taylor needs.
So far, our private duty nursing has been great! We have had three different nurses come into our home. They all have different personalities, but they are all awesome! They do such a wonderful job taking care of Taylor. They hold her, stretch her, sing to her, and most of all love on her! We are very blessed to have such caring individuals taking care of our princess! Hopefully, we will be able to keep them! As of last week, our insurance was trying to reduce our hours to 4 per day and then when Jeff is out of school for the summer they are looking to pull all the hours all together. This is another frustrating part of her recovery. Anyone that comes into our home can see the whole picture to why we need help. However, when you're only looking at a piece of paper with a diagnosis of a 8 month old everything is not so clear. I honestly, only hold Taylor for about 10 minutes while our nurse is here. The boys are ALL over mommy! It feels so incredibly great being home, but it is also more draining trying to juggle LIFE!
Taylor started OT today. Her therapist seems so nice and had some great advice about additional therapies Taylor could be receiving. One in which is a vision therapist. We had never even heard of this while in rehab. PT will start on Saturday. She will receive each service twice a week.
I have the ringbone on my phone, "It won't be like this for long" by Darius Rucker. Every time my phone rings, it reminds me that times may be tough right now, but eventually Taylor will get better. I keep holding on to that! Thank you to everyone who continues to lift Taylor and the rest of our family up in prayer! You guys are the best!
Much love,
Tammy
God Bless
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3 comments:
Those are the sweetest pics!!! Her big brothers cannot seem to get enough of her. She is so beautiful and has that typical look of MOM can you get them off me please!! So sweet to see them together at home on a regular basis. God bless you all and you continue to be in my prayers. Pam Keil
Just wanted to let you know u all are in our prayers! Your family reminds me of my sister. She has 2 older boys and my neice, Christy, that was born with spinal bifida. The doctors tried to get my sis to have an abortion saying she would be a vegetable but my sis says that was not her choice to make but God's. Christy was not a vegetable but still the docs said she wouldnt live past the age of 2 and wouldnt be mentally capable. She has had multiple surgeries, etc throughout her life. She is fine mentally but is in a wheelchair due to the hole in her spine. But most of all...Christy is now 19 by the grace of God and we love her more than anything...God is Good! I just wanted to give you some encouragement because it is all in God's Hands and HE only knows the plan He has for us. He will never give you more than what He knows you can take! Hang in there you have a beautiful family and so many people praying for you all!
Tammy it is so good to hear that Taylor, you, Jeff and the boys are all doing well. I love to see the boys out for walks and the occasional conversations we get to have. I know that you have a million people asking if you need anything or asking what they can help with but just a reminder, I am only a stones throw away and I am at Food Lion about a million times a week as well as Wal Mart so give me a hollar if you need anything! Wonderful to see the pics and may God continue to bless you and your family.
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