We hope everybody had a very Merry Christmas and a great New Year! We were able to fly to IA to spend 10 fantastic days with Jeff's family. The boys had the best time playing in the snow and spending time with family. Taylor was spoiled non stop with the amount of attention she was getting! I think that girl was held 24/7. It was really nice being able to see all of our IA family and friends. It had been 2 years since we have been there........
Before we went on Christmas break, Taylor had a cardio check up and we got even better news! Dr. Hannon took Taylor out of the moderate stage and placed her in the mild......He said, it was "astonishing to see where Taylor's heart was two years ago and see where it is today!" In fact, when they measured it he said, at one angle when you look at her heart it looks totally normal. Then, when you start to take the measurements you can tell their is a heart deformity. He was very positive and we even talked about starting to ween her down on one of her heart meds. He recommended that we wait until this Spring and steer clear of the Winter months before we start the transition.
Before we went on Christmas break, Taylor had a cardio check up and we got even better news! Dr. Hannon took Taylor out of the moderate stage and placed her in the mild......He said, it was "astonishing to see where Taylor's heart was two years ago and see where it is today!" In fact, when they measured it he said, at one angle when you look at her heart it looks totally normal. Then, when you start to take the measurements you can tell their is a heart deformity. He was very positive and we even talked about starting to ween her down on one of her heart meds. He recommended that we wait until this Spring and steer clear of the Winter months before we start the transition.
Speaking of weening......Taylor is now completely off of one of her seizure meds, phenobarbital!!! This was such exciting news! Now for the kicker........Taylor has been seizure free for quite a while and then out of the blue she starting having 1 to 2 per day.....This is still nothing compared to what her life was like last year, but it is still puzzling. We are trying to figure out what is going on with her? Regardless, she is still a very happy girl and loves all the cuddle time she gets daily!
Today I took Taylor to see a pediatric orthopedists at Duke. They took an x-ray of her spine and officially told us she has Scoliosis. We kind of already knew this because it is visible to see the curve in her back. The x-ray showed her spine was curved at 40% and she needed to have a back brace. So, they measured her and we picked out a cute back brace that has pink hearts all over it(you know she's got to look good in it) and it will be ready February 3rd.
Everyone is doing great and We are looking forward to what 2011 has in store for us~
Tammy
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