Tammy talks a little bit about Taylor not holding her formula down. Apparently this has continued into the weekend and they have placed an IV. I will hopefully get more details tomorrow. We are confident the power of Prayer and the love of Christ will continue to blast through these obstacles.
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Taylor turned 6 months old yesterday (Wednesday). I had a piece of cheese cake from the cafeteria in her honor! I still can't believe we've been in the hospital for the past 10 WEEKS! Therapy is still going well and she is making progress. However, it gets frustrating because the therapist can't be as aggressive as they would like because they are working around her feeding and medication schedule. Nutrition and medication are a higher priority than her rehab. Unfortunately, Taylor is not keeping her milk down as well as she did when she was at Duke. When we were at Duke she was eating 4 ounces every 3 hours over a 30 minute time frame. After the transfer, Taylor threw up a couple of times, so they slowed down her feeding to 2 ounces over a 1 hour time frame. It has taken 2 weeks to bring her back up to 3 ounces. Then, Taylor threw up twice yesterday and once today, so she is back down to 2 ounces. I don't think it is so much acid reflux, she just starts to cough and then gags and then up comes her milk. Her therapists try to schedule her sessions around her meds and feedings, but sometimes it just doesn't work out so great. Speech is very hesitant to be aggressive stimulating her mouth because she is afraid that she is going to start gagging. I just pray that Taylor will be able keep her food down so they can eventually feed her a higher volume over a shorter period of time. That would allow the therapist to be more aggressive...
Jeff had to take a half day today to take Tate to the doctor. He has a double ear infection and a sinus infection. Hopefully, since he is on antibiotics he will start to feel better. Tanner is doing great and becoming a master at playing the Wii. He also knows all the words to the theme song Power Rangers.....thanks Tim! Well, I better run. Love you guys!
Tammy
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God Bless
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2 comments:
Slow and steady wins the race, slow and steady wins the race. Remember that, okay? I know that you are frustrated, and things can get you down at times, but just remember that saying. Taylor has not come all this way for nothing. God has a plan, on his time, not ours. By the way, I am a die hard Duke fan, and from the way Taylor is responding, she must be too! She is just upset about being away from the best college EVER! Give her time, she will get used to it, and then will be okay :) Thinking and praying for you all...
The Buckley's
Taylor looks really good. Jessica and I think she really looks an awful lot like Taylin! We hope that each day brings you a little more good news! Taylor is mighty strong and has a huge following. Taylor and all of you remain in our prayers daily. Linda Salzman and Jessica Hardison
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