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So this is the deal, the doctors here at Duke have been doing blood cultures daily since Taylor's episode last Thursday. They determined that she had a bacterial (staff infection) in her Broviac. Since then, a second infection appeared on a culture they did on the 20th. She has not tested positive for anything since the 20th, but they will be giving her 10 days worth of antibiotics to kill any infection. This morning the doctors came in and said Taylor will need to have the Broviac taken out. They put in an IV in her left foot around 2pm and are trying to schedule her to have the Broviac taken out this evening. If they don't get to her today, they are hoping to get it taken care of tomorrow. As for Greenville... when we will be going is still up in the air. They just said they should be able to get us there this week. Everything happens for a reason, right! Taylor has had a great day with Physical and Occupational Therapy. During PT, she was very alert and even pulled her head up when she was on her tummy exercising. She was also able to suck again a few times during OT. The therapist has been trying to seduce her with apple sauce... She took a little bit. Later, with me I spoon fed her a little bit of apple sauce. I didn't give her much because the therapist said to try this twice a day, only giving 5 to 6 tiny bites at a time. However, she did very well. She licked it and kind of gave me a look like, "what are you putting in my mouth?" She digested all of it and never once spit it out. I just kept smiling and praising her for the outstanding job she was doing... Little by little, Taylor is amazing us all!... I spoke to a mother of 3, from New Bern, North Carolina last night on the phone. Like Jeff and I, they have two boys and a girl. Her daughter was diagnosed with Cardiomyopathy when she was 13 months old. It has been 3 years now and she is completely healed. She is a walking miracle and a testament to what God can do. It was good to talk to someone who has been in my shoes and had some inspiring stories of her little girl. It gave me a lot of hope to hear her story. God is good and He's not done with Taylor... sending my love!
Tammy
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God Bless
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9 comments:
Hi Jeff and Tammy,
Sorry to hear about another infection and yet another delay but we are delighted to read that Taylor was able to enjoy a few bites of applesauce. Keep up your amazing good spirits and faith! We are keeping you all in our prayers,
Love,
Bernie and Bill
Dear Whiteheads,
We are just constantly amazed at the steady stream of miracles, one little miracle after another! We're all blessed by your great faith and we pray that it will be enlarged every day and that you'll have great peace and joy about each of Taylor's accomplishments. She's on the road! And we are believing that the Lord will speed up her healing, too. We love you and we're standing with you every minute of every day, in prayer and faith!
Love and hugs,
Anne Chick and family
Well Tammy, it looks like the Lord sent you a messenger in that lady with the daughter who had the Cardiomyopathy! He is letting you know, like Taylor's turtle says, that slow and steady wins the race! Isn't it amazing the encouragement he sends us when we need it most? I am so amazed at the progress she has made so far...and YAY for applesauce! God is good, and he is far from done with Taylor yet! He has so much in store for her, now and in the future, I am expecting great things! As always, we are praying for you, and thinking of you...keep ya'lls head lifted towards heaven...for that is where the real healing comes from!
Love,
the Buckley's
Tammy & Jeff: I'm so sorry about the delay in getting back to Pitt, but Taylor's therapy successes sound just wonderful! There is a saying that goes: "With God's strength BEHIND you, his love WITHIN you, and his arms UNDERNEATH you, you are more than sufficient for the days AHEAD of you." You all know that Taylor and the rest of your family have that strength, love, and support from God. Hugs & Love to all of you! Aunt Jan & Uncle Royce
Thanks for the update...Duke must be where Taylor needs to be right now and God knows that. He will move her when the time is right. I am so happy she is making so much progress--that is awesome!
E. Batts
Hey tammy
It was so nice to talk to you the other day. I pray I was able to help you and offer you some encouragement. Taylor is a beautiful baby girl your whole family is. Sorry to hear about the new infection, but just remember 2 steps forward and 1 step back sometimes. Just keep looking to the Lord. He knows what is best and it is all in HIS timing. My family is praying for you and if you are still in DUKE teusday I would love to meet you and sweet Taylor. Call me any time . May the Lord comfort you and guide you each step of the way
Rhonda
www.caringbridge.org/visit/madelyngurganus
Jeff, Tammy, and family,
We continue to pray that your little girl gets healthier and stronger each day. God will heal her, it is just taking some time. Stay strong and God Bless all of you.
Jenni Klocke Benesh
Julian has been very excited about Taylor's progress. He has done a special prayer for her and the whole family is doing another one. Your family is in our prayers and may God continue to Bless you and Taylor. She is truly an adorable little blessing. Wishing you much love, peace, and prayers, the Scoz Family.
I hope that our money we raise can help pay for the medical bills, It is amazing that so many miracles keep happening to little Taylor.
R.A
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