Friday, January 16

It’s never easy to see a baby in the hospital with IV tubes hooked up and ventilation tubes in her nose, but it felt so good to be able to see Taylor and be able to give Jeff and Tammy a hug! Taylor is such a beautiful child and looked fairly peaceful today. Overall, today was a pretty quiet day. They did another echocardiogram around 2:00ish, as of 5:30 the Cardiologist hadn’t stopped in to discuss the results. Hopefully they will see some sort of improvement in Taylor’s heart.

They are still concerned about the left lung as it has some “crud” in it. They have been periodically suctioning fluids out of it. To help the lung, Taylor was hooked up to a ventilator today that provides pressure support ventilation via a nasal tube. It didn’t look real comfortable but Taylor was a model patient! This treatment applies more pressure when Taylor breathes in to help expand the left lung. Jeff thought this was helping and her breathing was less raspy with less phlegm, so hopefully when they do x-rays tomorrow morning at 4:00 am her lungs will look much better.

The rhythmic arm motions seem to be less vigorous and more periodic. For most of the morning she didn’t do much of the motion, but around 2:00 she started a little bit. But everyone agreed it is much less vigorous. She is still heavily sedated, so it’s hard to say if this is significant or not. Time will tell…

Taylor’s eyesight remains a concern as well. Her eyes are reacting to light and they seemed to look better today. However she still is not tracking movement or appears to not focus. Again, she is heavily sedated, so hopefully this will improve with time.

Lindsey and I were able to grab a quick bite to eat with Jeff and had an interesting conversation. Jeff and Tammy have so much respect and thankfulness for the doctors and nurses, however he said one of the nurses had commented that not all families are like that. Some families treat the nurses real poorly and the nurse couldn’t figure out why that would be. Jeff thinks the difference is faith. The families that are rude and treat the staff poorly most likely have not given their child back to Christ. And falling to put your faith in the Lords hands increases the burden on the families as they feel more pressure and responsibility. Jeff also talked about the comfort that Tammy and Jeff have received from Prayer. They pray not only for Taylor to be healed, but they also spend time thanking the Lord for the blessings they have received. This has been a tough time, but we all have so much to be thankful for.

Thank you to everyone for your continued support and Prayers. God Bless.