Just a quick update today. Another blessing for Taylor, they were able to remove the oxygen and one of the remaining nasal tubes. So now Taylor only has the tube that is used for feeding still in her nose. I know this will go a long way in helping to keep Taylor relaxed.
They also told Jeff and Tammy they want them to hold Taylor as much as possible when she is awake. So all three are enjoying that. Tammy said it's a bit awkward with the IV's and such but feels so wonderful. She started crying as she described it as "like holding your child for the first time." She said it was absolutely amazing. They also got to dress Taylor today. She can wear the full body onesies with buttons...not zippers.
The hospital called last night at midnight to ask if they could move her central line to the other leg...I guess it started leaking. They also did another blood transfusion, I believe this is the 4th transfusion they have done.
The Physical Therapist gave them a lot of good exercises to start doing with Taylor. This will help relax her muscles when she tenses up. They also were concerned that she seemed to be lacking the sucking reflex and was not swallowing. It will be very important that she regains the sucking reflex and the swallowing otherwise she will always have to be fed through a tube. So they are going to start working on that. Although the nurse was very encouraged this afternoon and seemed to think she has started swallowing. She also said she was doing better supporting her head when they sat her up. Overall, the nurse said she was definitely doing things in the afternoon that she wasn’t doing in the morning.
They lowered her sedation level, and plan to keep it at the current level for the next month. Taylor has come such a long ways already, and still has such a long ways to go. We all feel so blessed by her progress.
Who would of thought a 4-month-old baby could teach us so much. She is a true testament to the power of Prayer. Please continue to send your love, thoughts, and Prayers. Taylor will continue to fight and show us the true glory of God’s grace.
God Bless.
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6 comments:
Jeff & Tammy,
We've kept Taylor and your whole family in our prayers daily, keep your Faith in the Lord and he will get you thru. If there's anything we can do for you, you know all you have to do is ask.
In Christian Love,
Jeff & Shelia Parker
Tammy & Jeff,
Even though I've been reading the updates I've yet to take a moment to leave a comment. But I wanted you to know I continue to pray for y'all to overcome this valley, or hill, whichever it may be. Things are sure looking alot better than they were, but I don't think God's through with Taylor yet. But just remember, God's never late w/ his work, He's always right on time.
Jaclyn
There is something very powerful about the human touch and holding your child. The pictures were moving and brought tears to my eyes. God is truly watching over your family and holding everyone in his loving arms.
We love you! John, Stacey, and Grace Evert
The pictures said it all... so touching... she is beautiful... being held by her parents and also in the arms of "Jesus"... love ya Uncle Don, Aunt Cheryl.
Tammy please know that all of you are in our prayers. Trust in the Lord's work. "I pray for your comfort in knowing your baby better than any doctor or nurse. Love on her and be encouraged by what you see and feel." A truly "faithful" doctor shared that with me during my son's time in the NICU. Let your faith be your strength.
You have a special place in my heart! Love Jennifer Thompson Santaniello
Whiteheads, all our thoughts and prayers are with you. keep the faith we love you please let us know if there is anything we can do. Kristin and Jeff Lovingood
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